BEBAN DAN PSYCHOLOGICAL WELL BEING PADA KELUARGA PASIEN YANG MENJALANI HEMODIALISIS
The psychological needs of the family as caregivers are often ignored and not fulfilled by health workers, this is because caregivers are not fully planned in patient care management. This can have a negative impact on the treatment process for HD patients. There is still little information about the burden and phychological well-being of HD patients in Indonesia because some studies only focus on the burden on HD patients. Therefore this study focuses on assessing the burden and psychological well-being of caregivers of hemodialysis patients. This study aims to assess the burden and psychological well-being and its relationship with the demographic characteristics of hemodialysis patients. This study used a cross-sectional and analytic descriptive design involving 197 family caregivers of hemodialysis patients. Data collection was carried out at two hemodialysis centers in the city of Bekasi, from July to August 2022. A consecutive sampling technique was used to select research respondents. Data collection used a demographic characteristic questionnaire, Zarit Burden Interview (ZBI) and Ryff's Psychological Well-Being Scale – 18 Items (RPWB-18). Demographic characteristics data is presented in the form of frequency, mean percentage and standard deviation. Spearman rank test is used to see the correlation of variables. The results showed that the average ZBI score was 47.87 ± 12.16 and the PWB score was 70.20 ± 10.37, the correlation coefficient was -0.756, the P-value was 0.0001, indicating that there is a significant negative correlation between family burden and psychological well-being, which means that the greater the score family burden, the lower the psychological well-being score. Based on the results of this study, the needs of the family as caregivers need to be one of the focuses of providing nursing care by nurses.
Adejumo, O. A., Iyawe, I. O., Akinbodewa, A. A., Abolarin, O. S., & Alli, E. O. (2019). Burden, psychological well-being and quality of life of caregivers of end stage renal disease patients. Ghana Medical Journal, 53(3), 190–196. https://doi.org/10.4314/gmj.v53i3.2
Bawazier, L. A., Stanley, I., Sianipar, W., & Suhardjono. (2018). Anxiety and depression among caregivers of hemodialysis patients at the Indonesian national referral hospital. Medical Journal of Indonesia, 27(4), 271–278. https://doi.org/10.13181/mji.v27i4.2999
Bayoumi, M. M. (2014). Subjective Burden on Family Carers of Hemodialysis Patients. Open Journal of Nephrology, 04(02), 79–85. https://doi.org/10.4236/ojneph.2014.42011
Belasco, A., Barbosa, D., Bettencourt, A. R., Diccini, S., & Sesso, R. (2006). Quality of Life of Family Caregivers of Elderly Patients on Hemodialysis and Peritoneal Dialysis. American Journal of Kidney Diseases, 48(6), 955–963. https://doi.org/10.1053/j.ajkd.2006.08.017
Belasco, A. G., & Sesso, R. (2002). Burden and quality of life of caregivers for hemodialysis patients. American Journal of Kidney Diseases, 39(4), 805–812. https://doi.org/10.1053/ajkd.2002.32001
Caqueo-Urízar, A., Gutiérrez-Maldonado, J., & Miranda-Castillo, C. (2009). Quality of life in caregivers of patients with schizophrenia: A literature review. Health and Quality of Life Outcomes, 7, 84. https://doi.org/10.1186/1477-7525-7-84
Çelik, G., Annagur, B. B., Yilmaz, M., Demir, T., & Kara, F. (2012). Are sleep and life quality of family caregivers affected as much as those of hemodialysis patients? General Hospital Psychiatry, 34(5), 518–524. https://doi.org/10.1016/j.genhosppsych.2012.01.013
Chou, K. R. (2000). Caregiver burden: A concept analysis. Journal of Pediatric Nursing, 15(6), 398–407. https://doi.org/10.1053/jpdn.2000.16709
EK, A., & NA, S. (2014). The Burdens On Caregivers Of Patients Above 65 Years Old Receiving Hemodialysis: A Qualitative Study. Health Care : Current Reviews, 02(01), 1–6. https://doi.org/10.4172/hccr.1000118
Esmaili, H., Majlessi, F., Montazeri, A., Sadeghi, R., Nedjat, S., & Zeinali, J. (2016). Dialysis adequacy and necessity of implement health education models to its promotion in Iran. International Journal of Medical Research & Health Sciences, 5(10), 116–121. https://www.researchgate.net/publication/311544317
Farahani, M. A., Ghane, G., Sydfatemi, N., & Hagani, H. (2016). Effect of educational program on the burden of family caregivers of hemodialysis patients. Evidence Based Care Journal, 6(1), 7–17.
Fitria, A., Mutiara, D. H., Nurillawaty, A., & Prima, A. (2022). Jurnal Ilmiah Keperawatan IMELDA http://jurnal.uimedan.ac.id/index.php/JURNALKEPERAWATAN Vol. 8, No. 1, Maret 2022 e-ISSN 2597-7172, p-ISSN 2442-8108 PREVALENSI KECEMASAN DAN DEPRESI PADA PASIEN HEMODIALISIS DI MASA PANDEMI COVID-19. 8(1), 17–26.
Gerogianni, S. K., & Babatsikou, F. P. (2014). Social Aspects of Chronic Renal Failure in Patients Undergoing Haemodialysis. International Journal of Caring Sciences, 7(3), 740–745. https://www.proquest.com/scholarly-journals/social-aspects-chronic-renal-failure-patients/docview/1612539180/se-2
Hawamdeh, S., Almari, A. M., Almutairi, A. S., & Dator, W. L. T. (2017). Determinants and prevalence of depression in patients with chronic renal disease, and their caregivers. International Journal of Nephrology and Renovascular Disease, 10, 183–189. https://doi.org/10.2147/IJNRD.S139652
Ibrahim, N., Chiew-Thong, N. K., Desa, A., & Razali, R. (2013). Depression and coping in adults undergoing dialysis for end-stage renal disease. Asia-Pacific Psychiatry, 5(SUPPL. 1), 35–40. https://doi.org/10.1111/appy.12042
Jafari, H., Ebrahimi, A., Aghaei, A., & Khatony, A. (2018). The relationship between care burden and quality of life in caregivers of hemodialysis patients. BMC Nephrology, 19(321), 1–8. https://doi.org/https://doi.org/10.1186/s12882-018-1120-1
Jha, V., Garcia-Garcia, G., Iseki, K., Li, Z., Naicker, S., Plattner, B., Saran, R., Wang, A. Y. M., & Yang, C. W. (2013). Chronic kidney disease: Global dimension and perspectives. The Lancet, 382(9888), 260–272. https://doi.org/10.1016/S0140-6736(13)60687-X
Oyegbile, Y. O., & Brysiewicz, P. (2016). Comparison between different D-Dimer cutoff values to assess the individual risk of recurrent venous thromboembolism: Analysis of results obtained in the DULCIS study. International Journal of Laboratory Hematology, 38(1), 42–49. https://doi.org/10.1111/ijlh.12426
Pamungkas, latif F., Prima, A., Wada, F. H., & Astuti, P. (2021). Studi Literatur: Pengaruh Terapi Pijat Refleksi Kaki Terhadap Kualitas Tidur Lanjut Usia. Jurnal Ilmiah Keperawatan Imelda, 7(1), 14–19.
Peter, R. E. (2021). CARE BURDEN OF CAREGIVERS OF HEMODIALYSIS PATIENTS. Indian Journal of Applied Research, March, 0–5.
Pio, T. M. T., Prihanto, J. B., Jahan, Y., Hirose, N., Kazawa, K., & Moriyama, M. (2022). Assessing Burden, Anxiety, Depression, and Quality of Life among Caregivers of Hemodialysis Patients in Indonesia: A Cross-Sectional Study. International Journal of Environmental Research and Public Health, 19(8). https://doi.org/10.3390/ijerph19084544
Prima, A., Harahap, D., Lanahdiana, L., Ilyas, A. S., Rambu, S. H., Hermawan, A., Andas, N. H., & Andas, A. M. (2022). Prevalence Anxiety Family Members of Patients Admitted to Inpatient Hospital Room during Pandemic COVID-19. Open Access Macedonian Journal of Medical Sciences, 10(E), 1029–1034. https://doi.org/10.3889/oamjms.2022.9968
Rafiyah, I. (2011). Review: Burden on Family Caregivers Caring for Patients with Schizophrenia and Its Related Factors. Nurse Media Journal of Nursing, 1(1), 29–41. http://ejournal.undip.ac.id/index.php/medianers/article/view/745
Rioux, J. P., Narayanan, R., & Chan, C. T. (2012). Caregiver burden among nocturnal home hemodialysis patients. Hemodialysis International, 16(2), 214–219. https://doi.org/10.1111/j.1542-4758.2011.00657.x
Saeed, Z., Ahmad, A. M., Shakoor, A., Ghafoor, F., & Kanwal, S. (2012). Depression in patients on hemodialysis and their caregivers. Saudi Journal of Kidney Diseases and Transplantation : An Official Publication of the Saudi Center for Organ Transplantation, Saudi Arabia, 23(5), 946–952. https://doi.org/10.4103/1319-2442.100869
Schick-Makaroff, K., Wozniak, L. A., Short, H., Davison, S. N., Klarenbach, S., Buzinski, R., Walsh, M., & Johnson, J. A. (2021). Burden of mental health symptoms and perceptions of their management in in-centre hemodialysis care: a mixed methods study. Journal of Patient-Reported Outcomes, 5(1). https://doi.org/10.1186/s41687-021-00385-z
Shakya, D., Tuladhar, J., & Poudel, S. (2017). Burden and Depression among Caregivers of Hemodialysis Patients. Palliative Medicine & Care: Open Access, 4(1), 1–6. https://doi.org/10.15226/2374-8362/4/1/00131
Sherwood, P. R., Given, C. W., Given, B. A., & Von Eye, A. (2005). Caregiver burden and depressive symptoms: Analysis of common outcomes in caregivers of elderly patients. Journal of Aging and Health, 17(2), 125–147. https://doi.org/10.1177/0898264304274179
Wang, V., Vilme, H., Maciejewski, M. L., & Boulware, L. E. (2016). The Economic Burden of Chronic Kidney Disease and End-Stage Renal Disease. Seminars in Nephrology, 36(4), 319–330. https://doi.org/10.1016/j.semnephrol.2016.05.008
Copyright (c) 2023 Jurnal Ilmiah Keperawatan IMELDA
This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.